| fibromyalgia ?yes or no | Hot Conversation |
I was told I have fibromyalgia and the symptoms are wide spread pain to the touch,brain fog,tiredness,ect.my symptoms arent like that just ain in my arm and only sometimes =,im not sure if I have it or not.what are other symptoms of fibromyalgia and how to feel better.
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ReginaLove, that is SO great to hear! As for soy, it may help with menopause symptoms -- it it controversial. The best way to use soy is in the form of whole fermented soy foods (miso, tempeh, tamari and natto). Non-fermented soy foods such as soy mi
Agreed. I never thought I was vain until I had a mastectomy at age 39. I was devastated and told the doc I wanted to wake up with implants. Now at age 60, I am lopsided and wondering if I was just avoiding the inevitable. You get what you get and you
Sounds very interesting.
Spike, you are awesome! Love your perspective, thanks for sharing.I will turn 53 in 6 weeks and still break out.
May I also assume that your skin is still quite oily and shows no or very few wrinkles? If so...
COUNT YOUR BLESSINGS!
1) Your skin doesn't look like beat-up luggage now, and probably never wi
I have had fibro for over 10 years….it is more than just pain in your arms…and tender points…I would first wake up feeling like I had not slept at all…then would sleep all day…and the pattern would continue…never, ever could get enough sleep…that’s a common feeling…the next is waking up feeling as though you had been hit by an 18 wheeler truck…every bone…every muscle…every part of your body hurts…recent research is finding that the “tender points” are not going to be used for a Fibro diagnosis….they simply don’t mean anything…but there are a lot of sights on the internet, both good and bad…there are a lot of people who want to “cure” Fibro…and all they want is your money…so, I would encourage you to read up on what’s out there…check out some of the support groups…just get an idea of what most people with Fibro feel like…it has changed my life, and not for the better…I am no longer able to work…I don’t go out as much, since I can’t also tell how I’m going to feel, and I hate canceling at the last minute ~ so it’s affected really all aspects of my life…now, I just try to pace myself…eat right…light exercise, and go to a pain clinic doctor once a month for meeds…it at least allows me to get a good nights sleep, and not live with constant pain…I hope you don’t have Fibro…i wouldn’t wish it on anyone…good luck to you…
Hi Denise.see thats what I mean I dont know what going on I have some joint pain in various places and the pain is not constant it comes and goes mostly neck discomfort and my one arm when I lift something that has gotten worse with time I first noticed something wrong 2 years ago when I woke with a swollen toe ,didnt hurt it just was painful to step down the toe and ball of my foot hurt for monthhs then slowly the pain left but the swelling in my toe always stayed .the little by little my arm became painful here and there now its when ever i try to lift anything even a can or soup.but when i press that area on my arm there is no pain.go figure.do you have memory problems and spaciness? and how do you support your self if you cant work,I havent worked but I need tio get back to a job im running out of $$.im a cna/gna and working in a nursing home is hard if I cant use my arm that much.I am tired alot but is that just being bummed out cause I feel so lousy.I even though possibly ms but have no insurance to find out.I have looked around the net but didnt find anything that I didnt already know.sometimes I just dont know what to do .sometimes I dont care to do anything.
HI Linda…yes, I have memory issues….it’s called Fibro Fog and is quite common..I’ve started doing memory games to work on it, as it is problematic at times….I can’t find my car when I am in a parking lot..once, it was parked in a parking garage for a week at the airport and I literally spent over an hour looking for it…and I had even made a point of looking at landmarks to remind me…I use lists…but it’s frustrating…my husband is retired USAF, so I am fortunate that I don’t have to work, but we’ve had to make changes in our lives, and I feel guilty about not working…I’ve been tested for every disease imaginable, and that’s basically how they come up with a diagnosis of Fibro ~ when everything else comes out negative…I wish i had some encouraging words for you..I think what has helped me is to talk to others that have Fibro as well, since they “get” how I feel, they understand…so I would encourage you to check that out…I also have been inundated with people that swear they can “cure” Fibro…so beware…not saying that all of them are just our there to get your money….but just be cautious…there is no known cure…some people find things that work for them…that’s great..for those of us that have had this for a long time, and have tried so many different things…I’m not wasting my time on supplements, etc…just my opinion, and again., no offense to those that have found them helpful….take care of you…I’ll keep you in my thoughts and hope things get better…
hi denise,ya know the biggest problem i have is convincing my husband that this just isnt the usual aches and pain that come with being 51 and the brain fog isnt the meds im taking.which I know it isnt. was taking these meds way before this fibro issue.im not in a position not to work and my husband keep saying babe I think if you get out and start working again it will take your mind off of things.the forgeting is what scares me most,especialy at work the responsibility is so great that there is no room for error when your careing for someone who needs you to be on top of things.sometimes I sit and stare like im in another world and I fell like it too.I feel like its an out of body feeling and im running on auto pilot.menopause on top of it doesnt help either .Im never sure what what,were you ever tested for ms and if so how to they diagnose that?is there any specific testing? thanks for your help nobody ever could give me any straight answers before thanks for letting me know im not going crazy.
Linda….we could be twins ~ I could have written everything you did…and my husband has said exactly what yours is saying…I can’t tell you how often I’ve heard “you need to get in a routine, you’ll feel better”…or if I say how I’m achy, he’ll say “I ache every morning too”…I’m about your age…just turned 50 in May, and we’ve been married for 30 years this September…and I know he loves me…but this has been a real challenge for our marriage…Once we he had the flu and was really sick, I said imagine feeling like that every day…but I don’t think he gets it…partly because people with Fibro “don’t look sick” ~ that’s one thing that drives us crazy…I do make an effort to put makeup on every day…try to look nice even if I’m just staying home…and if people were to see me in the store, I’m sure they would be shocked to realize the effort it took to get there…and how exhausted I’ll be when I get home…or how I have to stagger my shopping since I can’t do everything in one day…the Fibro fog is bad too, and my hubby will say “i told you that already” or things like that..and it just hurts….but, I don’t know what else to do…I guess what I’d like to get across to him is that does he really think I would ever want to feel this way? take the meds I do? Change my life the way it is? I wouldn’t wish this life on anyone…i’ve been going through menopause as well…I had a complete hysterectomy (which is what I think started all of this ~ I had NO symptoms before)…and was on Premarin until about 2 years ago…and my doc took me off, so I’ve slowly started having the worst hot flashes…so they finally put me back on premarin…I was going through 4 of 5 sets of p’s a night..getting no sleep…horrible…so again…I could have written your letter…and NO you are not crazy…but you will meet a lot of people that make you feel like you are…and doctors that dismiss your aches and pains…you just have to find that voice inside of yourself and stand up for yourself..and don’t take no…find another doc if you’re not happy with the one you see…life is too short to be miserable, and while I’m still not where I want to be or feel like I want to feel…but, I’m trying every day to be positive…my biggest hope is that someday, someone will find out what causes this, and this will all just be a bad memory…take care and write anytime…take care Linda…
ha ha ha menopause & fibro what a cruel joke.been in the throws of that for 4 years now ans still cycle every month ,hot flashes that sometimes make me dizzy,sometimes feel quezzy for days,yesterday my joint in my fingers started to hurt and my ancles were stiif and sore when i woke up.my husband says the same thing Im achey too my back is painful everyday ,add menpause and fibro and see what words come out of you mouth.you are right who in god precious name would want to feel like this.I cant take hormones because there is cancer a mile long in my immediate family .my mom is as we write being tested for breast cancer at 78 imagine that.im just affraid if I dont get to work soon my husband and I will begin to have issues in our relationship money is tight and his paycheck only goes so far when we just bought a new home 1 year ago.I wish my husband could understand it would take alot of pressure off me but hes russian and Italian and thats one heck of a combo,mind you he a wonderful man but believes that you do what you have to do no matter what,tough it out .so thats the war im up against,ive gotta go do some errands ,what a job that going to be.talk to ya later. thanks for the warm heart and the ear.
Fibromyaglia seems to be one of those things that takes time to find a solution, and then sufferers may never find one. Obviously, you have to look at your diet – eat organic fresh fruits and veggies if you can. Reduce the amount of toxins and chemicals in your food and environment. Check out your hormone balance. And also get your thyroid and adrenals checked. Good quality supplements should improve your overall health and may or may not impact on your health issue. Doctors do not have an answer for fibromyalgia.
This is a bit of recent research that my be worth investigating as CFS and fibromyalgia symptons are much the same:
Researchers in Belgium and Poland reported that the serum plasma levels of CoQ10 were significantly lower in patients with chronic fatigue syndrome. 58 men and women who had been diagnosed with chronic fatigue and significantly lower CoQ10 levels when compared to normal subjects. After they were given CoQ10 in supplementation, there was a significant improvement in the symptoms related to their chronic fatigue.
This is what Doctor Ray Strand has to say about fibromyalgia:
People always ask me why I changed my mind about recommending nutritional supplements. I simply tell them that it was my wife’s fault. My wife has suffered from chronic fatigue and fibromyalgia for over 25 years. She thought when she married a physician that her health would improve. She was totally wrong. No matter what I did or prescribed, her condition became worse year after year. In 1995, she came down with a serious pneumonia. Even though this eventually cleared, she was left with a serious fatigue. She was only able to get out of bed one or two hours a day and this condition lasted several months, in spite of seeing 4 different specialists and taking nine prescription medications.
It was at this time, my wife began taking some nutritional supplements that were given to her. Within days, she felt better and within a couple of months she was off all of her medication. She began doing better than she had done in years. It was truly amazing to me. There is nothing harder as a physician than to see your wife suffer and not be able to do anything for her. Now this fear was replaced with the fear that she had improved because of some vitamins. This contradicted everything that I had believed and taught my patients for the first 23 years of my practice. It is also what launched me into this intensive research about the health benefits of nutritional supplements. If something existed that could help my patients, I certainly wanted to know more about it.
what kind of supplements did she take my life is so bad I would try anything to feel slightly normal.
Hi Linda,
I have information from Dr Ray Strand about Fibromyalgia – his wife Elizabeth suffered from it for many years until she tried a certain brand of nutritional supplements. I am happy to provide you with information if you wish. Go to my blog http://www.antiagingboomer.com and fill in the ‘Contact Helen’ form and I will get back to you.
Best wishes, Helen
A book that I have started reading is full of incredible information from leading-edge doctors. Suzanne Somers defines the eight anti-aging steps in her book ‘Breakthrough’ as being:
1. Get Bioidentical Hormone Replacement Therapy
2. Avoid Chemicals and Detoxify your body
3. Take nutrition seriously
4. Create a healthy GI tract
5. Avoid Pharmaceuticals unless absolutely necessary
6. Supplement your diet
7. Exercise regularly
8. Get proper sleep
I wish I had a magic wand to help people with fibromyalgia (my cousin suffers from it) but those steps do lay a good foundation for being healthy.
Research Thoracic Outlet Syndrome.
Google fibomyalgiar & be amazed. I’m incredulous that so many people still do not believe it is real. I just figure they never woke up sore all over for days and no idea why! One woman even said, “Fibro my ass!” How uneducated. Anyway I find that staying active also helps, even tho’ it is hard to force myself somedays, I do & then after my swim ( for an hou)r, I feel much better all day. I have found that Tramace is a very effective pain reliever. My doc suggested it for me because I cannot take nsaids (motrin, advil, etc.) It is a controlled substance in some areas, but my doc says it is not addictive and the dosage i take is quite low.