| Anyone here have interstitial cystitis? |
DIL was recently diagnosed with this. She is so depressed and in constant pain despite the pain pills. She can’t walk or sit for long and spends a lot of the day on the couch sleeping. And she is only 25. Is there any hope for a future for her ?
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I LOVE your story.It should be Eat,Pray,Love in England and mine France.I would love to continue chatting with you and encourage you to write about your own experience.SO wonderful....Michele
To reply to your question - 3 years ago I left the States to live in England after my divorce. I have lived alone here since then, found a pretty good job and have managed to support myself all through that time without using up savings. 
Perfect!Whoopi Goldberg determine that "normal" is a setting on the washing machine. The rest is all subjectives.
No we don't live together for now.He adores me as did two other younger men I was involved with before him. They were both very affectionate with me in public.I was the shy and old fashioned one always concerned about PDA public display of 
i suggest you google it and see what is it and the prognosis.
I found this. I was curious because i too suffer from urinary track infections. And i eat a lot of these items.
Interstitial cystitis
Last reviewed: June 17, 2010.
Interstitial cystitis is a long-term (chronic) inflammation of the bladder wall.
Causes, incidence, and risk factors
Interstitial cystitis (IC) is a painful condition due to inflammation of the tissues of the bladder wall. The cause is unknown. The condition is usually diagnosed by ruling out other conditions (such as sexually transmitted disease, bladder cancer, and bladder infections).
IC is frequently misdiagnosed as a urinary tract infection. Patients often go years without a correct diagnosis. On average, there is about a 4-year delay between the time the first symptoms occur and the diagnosis is made. The condition generally occurs around age 30 to 40, although it has been reported in younger people. Women are 10 times more likely to have IC than men.
Symptoms
Pain during intercourse
pelvic pain
Urinary discomfort
Urinary frequency (up to 60 times a day in severe cases)
Urinary urgency
Signs and tests
Diagnosis is made by ruling out other causes. Tests include:
Bladder biopsy
Cystoscopy (endoscopy of bladder)
Urine analysis
Urine culture
Urine cytology
Video urodynamics (shows how much urine must be in the bladder before you feel the need to urinate)
Treatment
There is no cure for IC, and there are no standard or consistently effective treatments. Results vary from person to person. As long as the cause is unknown, treatment is based on trial and error until you find relief. Elmiron is the only medication taken by mouth that is specifically approved for treating IC. This medicine coats the bladder like Pepto-Bismol coats the stomach.
Other medicines may include:
Opioid painkillers for severe pain
Tricyclic antidepressants such as Elavil (amitriptyline) to relieve pain and urinary frequency
Vistaril (hydroxyzine pamoate), an antihistamine that causes sedation, helps reduce urinary frequency
Other therapies include:
Bladder hydrodistention (over-filling the bladder with fluid while under general anesthesia)
Bladder training (using relaxation techniques to train the bladder to go only at specific times)
Instilled medications – medicines are placed directly into the bladder. Medicines that are given this way include dimethyl sulfoxide (DMS), heparin, Clorpactin, lidocaine, doxorubicin, or bacillus Calmette-Guerin (BCG) vaccine.
Physical therapy and biofeedback (may help relieve pelvic floor muscle spasms)
surgery, ranging from cystoscopic manipulation to bladder removal (cystectomy)
Diet modification
Some patients find that changes in their diet can help control symptoms. The idea is to avoid foods and beverages that can cause bladder irritation. Below are some of the foods that the Interstitial Cystitis Association says may cause bladder irritation.
Aged cheeses
Alcohol
Artificial sweeteners
Chocolate
Citrus juices
Coffee
Cranberry juice (Note: Although cranberry juice is often recommended for urinary tract infections, it can make IC symptoms worse.)
Fava and lima beans
Meats that are cured, processed, smoked, canned, aged, or that contain nitrites
Most fruits except blueberries, honeydew melon, and pears
Nuts except almonds, cashews, and pine nuts
Onions
Rye bread
Seasonings that contain MSG
Sour cream
Sourdough bread
Soy
Tea
Tofu
Tomatoes
Yogurt
Experts suggest that you do not stop eating all of these foods at one time. Instead, try eliminating one at a time to see if that helps relieve your symptoms. Support Groups, For additional information and support, see interstitial cystitis support groups.
Expectations (prognosis)
Treatment results vary. Some people respond well to simple treatments and dietary changes. Others may require extensive treatments or surgery.
Complications
Chronic depression
Chronic pain that may cause a change in lifestyle
Emotional trauma
High costs associated with frequent medical visits
Side effects of treatments (depending on the treatment)
Hi. I have IC and it will get better! Please tell her that. I am coming up on a year and I was the same way. Sitting standing walking burning 24/7 even with the pills. All I wanted to do also was sleep because it’s away to get away from the pain. I was misdiagnosed for six months. Went through many painfull test procedures. I eventually found a female urologist that was able to diagnosis me and get me started on treatment. My most important advice is just drink water!!!! I can’t explain what a difference that makes. And if u have any doubts about your doc find a female one it really helped me. I follow the food
List pretty well but the liquids are what effect me the most. There is a over the counter antacid called prelief. Look on there website. That removes acid in foods. Which is what causes the pain. The discomfort sitting for me was from pelvic floor dysfunction. It comes with the ic. It will get better to. I took soma relaxers they don’t alter your mental state. And after
Two days I could sit. Most importantly if she is in agony the doctors can do an instill straight Into her bladder and coat it with meds. I can tryi answer any questions u have. I don’t mind giving u my email if she wants. A year ago I was so depressed. It’s so hard but with the right doctor it will get better. I use to take six of those bladder pain pills a day without much relief. Then after diagnosis and other meds. Down to two a day and then one and I haven’t had one in two weeks! I hope this helps and let her know it will get better just got to get right doc and give treatment time. In 30 I thought life was
Over as I knew it. I would do everything to go to work all day and then sleep all weekend just to get away from the pain. Pls let me know if ican help.